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about introduction to rare diseases structure executive management committee (emc) scientific advisory board (sab) patient advisory council (pac) rare disease patient and ethics council (rd-pec) panel for biobank assessment collaborations what we do data linkage fairification of rare disease registries linked data and ontology task force ontologies in rare disease registries omics data genome-phenome analysis platform phenotypic data registry & biobank finder for patient registries registry common data elements core implementation group biosamples data registry & biobank finder for biobanks sample catalogue biobank assessment process biobank assessment panel bioinformatic tools ethical, legal and social issues (elsi) sharing of biosamples and data standards for informed consent patient engagement resources newsletters scientific publications forms and guides presentations and flyers periodic activity reports glossary for patients and families news events contact coordination office contacts directory organisations directory visit the platform our platform allows sharing data advances research, diagnosis and therapy development for rare diseases rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. connecting rare disease researchers worldwide analyse your data in our genome-phenome analysis platform rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. connecting rare disease researchers worldwide rare disease patients are directly engaged in our work rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. connecting rare disease researchers worldwide visit our global registry & biobank finder rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. connecting rare disease researchers worldwide browse individual rare disease biosamples stored in biobanks using our sample catalogue rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. connecting rare disease researchers worldwide our experts on ethical, legal & social issues work on models for data sharing ensuring protection of patient privacy rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. connecting rare disease researchers worldwide play the video is also available in: french , spanish , italian , german , arabic and russian . subtitles are available in almost 50 languages. connecting rare disease researchers worldwide rd-connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. to help researchers study rare diseases, rd-connect links different data types - omics (e.g. genomics), clinical information, patient registries and biobanks - into a common resource. rd-connect enables scientists and clinicians around the world to analyse genomics data and share them with other researchers. by making data accessible beyond the usual institutional and national boundaries, rd-connect speeds up research, diagnosis and therapy development to improve the lives of patients with rare diseases. read more quick links: about rd-connect patients & families genomic analysis ethics & legal patient registries biobanks bioinformatic tools newsletters contacts directory about rd-connect patients & families genomic analysis ethics & legal patient registries biobanks scientific publications newsletters contacts directory sign up to our newsletter email address * i accept the privacy policy . * receive monthy updates on rd-connect work and news from the rare disease field. recent news: video on the patient perspective on data sharing published: may 18, 2018 rd-connect receives the poster award at ecrd vienna 2018! published: april 30, 2018 report from the rd-connect annual meeting in athens published: april 20, 2018 rd-connect genome-phenome analysis platform is an irdirc recommended resource published: april 5, 2018 upcoming events: rd-connect gpap workshop at the european human genetics conference june 16 @ 10:30 - 12:00 soapbox science in newcastle june 16 @ 12:00 - 15:00 8th cnag-ciberer symposium on genomic medicine applied to rare diseases july 5 view all events an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. visit the platform: genome-phenome analysis platform analyse and share genomic data registry & biobank finder directory of rare disease biobanks and patient registries sample catalogue browse rare disease biosamples stored in biobanks sitemap news events contact coordination office contacts directory organisations directory about introduction to rare diseases structure executive management committee (emc) scientific advisory board (sab) patient advisory council (pac) rare disease patient and ethics council (rd-pec) panel for biobank assessment collaborations what we do data linkage fairification of rare disease registries linked data and ontology task force ontologies in rare disease registries omics data genome-phenome analysis platform phenotypic data registry & biobank finder for patient registries registry common data elements core implementation group biosamples data registry & biobank finder for biobanks sample catalogue biobank assessment process biobank assessment panel bioinformatic tools ethical, legal and social issues (elsi) sharing of biosamples and data standards for informed consent patient engagement resources newsletters scientific publications forms and guides presentations and flyers periodic activity reports glossary for patients and families news events contact coordination office contacts directory organisations directory quick links genome-phenome analysis platform registry & biobank finder sample catalogue get social newsletter sign up sign up to our newsletter email address * i accept the privacy policy . * rd-connect rd-connect coordination team institute of genetic medicine university of newcastle upon tyne international centre for life newcastle upon tyne ne1 3bz united kingdom email: libby wood (project manager) t: +44 191 241 8621 f: +44 191 241 8770 top /* ----------------------------------------- */ /* content template: loop item in recent news (frontpage) - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* content template: loop item in recent news (frontpage) - end */ /* ----------------------------------------- */

URL analysis for rd-connect.eu

https://rd-connect.eu/elsi/
https://rd-connect.eu/event/soapbox-science-in-newcastle/
https://rd-connect.eu/organisations-directory/
https://rd-connect.eu/forms-and-guides/
https://rd-connect.eu/biosamples-data/
https://rd-connect.eu/biosamples-data/rb-finder-for-biobanks/
https://rd-connect.eu/news/
https://rd-connect.eu/committee/rd-pec/
https://rd-connect.eu/biosamples-data/sample-catalogue/
https://rd-connect.eu/news-article/report-rd-connect-annual-meeting-athens/
https://rd-connect.eu/news-article/video-patient-perspective-data-sharing/
https://rd-connect.eu/event/8th-cnag-ciberer-symposium-genomic-medicine-applied-rare-diseases/
http://catalogue.rd-connect.eu/
https://rd-connect.eu/collaborations/
https://rd-connect.eu/presentations-and-flyers/

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% WHOIS rd-connect.eu
Domain: rd-connect.eu

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Onsite(s):
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SERVERS

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DOMAIN

  NAME rd-connect.eu

REGISTRAR

  NAME GoDaddy.com, LLC

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